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Living with chronic illness can be hard
And not just because of our symptoms
The ways that the worlds of work and social life are built make it hard for us to take part in the ways we might want to. Our lives can become very narrow, and we can end up feeling isolated and alone.
Even with so much moving online during the COVID pandemic, we still have limitations on our energy and focus which can make it hard to fully participate, even without the drain of travel.
For most of us, the less we have the kind of social contact we want to have, and the less we feel we're contributing in some way, the more stress, anxiety and depression we experience. And the more stress, anxiety and depression we experience, the worse our symptoms are, making it even harder to take action.
And this doesn't just have costs for us. It also has costs for our loved ones and carers, and even more so for society, in the loss of our energy, our ideas, and our contribution.
Current services and ‘solutions’ often do not address our real needs. When we try to articulate our experiences, our understanding of our conditions, and our needs - whether in a medical setting, or when seeking accommodations to make it possible for us to participate in work or social life - we are often dismissed, and worse, by those whose job it is supposed to be to help us.
There are many groups and charities out there doing great work supporting people living with chronic illnesses, through peer support groups, and research into possible causes and treatments.
But what we at We Make The Path CIC feel is missing from the landscape is the combination of action and reflection in the lives of chronically ill people ourselves.
We provide opportunities for chronically ill people to take the action they want to take, in a way that is sustainable for them, building confidence, skills, capacity and community along the way.
As well as individual benefits to mental, emotional, physical and social health and well-being, our goal is to see a ripple effect of improvement in the health and well-being of our participants' families, communities, and society at large.
About We Make The Path
What we do
The core services and programmes of We Make The Path CIC support chronically ill people to identify personal goals, and to take small, sustainable actions towards them, with one to one support and accountability.
We bring our individual clients together into peer groups. Each cohort identifies collective goals, and takes action together towards those goals.
We also run themed projects that emerge from wants and needs expressed by participants in our core work.
Who we work with
Our core work is open to anyone with a chronic illness, whether its causes, symptoms or effects are physical, mental or emotional.
We have a special focus on those who are unemployed, underemployed, or self-employed, and make our work open to people with low incomes at little or no cost.
Themed projects remain focused on the experiences, wants, needs, and wisdom of chronically ill people, but are open to everyone.
We seek always to operate in a way which is holistic, liberatory, and person-centred, encouraging people, individually and collectively, to generate practices for themselves which are nourishing and replenishing, and which enable them to be flexible and responsive in changing circumstances, which are often outside of their control.
We work according to the following principles:
Solidarity is fundamental. Until all of us are free, none of us is free.
All factors affect all other factors, all the time. Social, economic, environmental, political and personal are always interconnected.
Practice and theory are in constant relationship. Action generates reflection; reflection generates action.
The way we do things is as important as what we do. We can create the world we want in small ways now.
Each one of us matters, and we all deserve to be well resourced. Inner practice and inner healing play a core role in making working for change, at any level, sustainable beyond short-term actions.
Each of us can have a role in creating a better world. It doesn't matter what our skills and capacities are, or whether the work of change is at the most personal level or the most global. The basic requirement is willingness.
Relationships are key. Skilful relating is vital to creating lasting change.
Want to find out more?
Whether you want to find out about becoming a client, how we can support your organisation and its people, or how you can support our work, fill this form out to let us know:
We Make The Path CIC Website Terms & Conditions
The term 'We Make The Path CIC' or 'We Make The Path' or 'us' or 'we' refers to the owner of the website.
The term 'you' refers to the user or viewer of our website.
The content of the pages of this website is for your general information and use only. It is subject to change without notice.
Neither we nor any third parties provide any warranty or guarantee as to the accuracy, timeliness, performance, completeness or suitability of the information and materials found or offered on this website for any particular purpose. You acknowledge that such information and materials may contain inaccuracies or errors and we expressly exclude liability for any such inaccuracies or errors to the fullest extent permitted by law.
Your use of any information or materials on this website is entirely at your own risk, for which we shall not be liable. It shall be your own responsibility to ensure that any products, services or information available through this website meet your specific requirements.
This website contains material which is owned by or licensed to us. This material includes, but is not limited to, the design, layout, look, appearance and graphics. Reproduction is prohibited other than in accordance with the copyright notice, which forms part of these terms and conditions.
All trade marks reproduced in this website which are not the property of, or licensed to, the operator are acknowledged on the website.
Unauthorised use of this website may give rise to a claim for damages and/or be a criminal offence.
From time to time this website may also include links to other websites. These links are provided for your convenience to provide further information. They do not signify that we endorse the website(s). We have no responsibility for the content of the linked website(s).
Your use of this website and any dispute arising out of such use of the website is subject to the laws of Scotland.
Name: Elinor Predota
The type of personal information we collect
We currently collect and process the following information:
• Personal identifiers, contacts and characteristics (for example, name and contact details)
• Donations made
• Purchases made
How we get the personal information and why we have it
Most of the personal information we process is provided to us directly by you for one of the following reasons:
• You subscribe to receive notification of new blogposts
• You make a donation to the organisation
• You purchase something from the shop
We use the information that you have given us in order to provide you with information, services and/or products.
We may share this information with Strikingly and/or MailerLite for data processing purposes.
Under the General Data Protection Regulation (GDPR), the lawful bases we rely on for processing this information are:
(a) Your consent. You are able to remove your consent at any time. You can do this by contacting firstname.lastname@example.org
(b) We have a contractual obligation -- e.g. to provide you with a purchased product or service.
(f) We have a legitimate interest -- e.g. you have expressed interest in our work.
How we store your personal information
Your information is securely stored on our behalf by Strikingly and/or MailerLite.
We keep your name and contact details until such time as you unsubscribe from our blog or mailing list. We will then dispose your information by deleting you from the databases held by Strikingly and/or MailerLite.
Your data protection rights
Under data protection law, you have rights including:
Your right of access - You have the right to ask us for copies of your personal information.
Your right to rectification - You have the right to ask us to rectify personal information you think is inaccurate. You also have the right to ask us to complete information you think is incomplete.
Your right to erasure - You have the right to ask us to erase your personal information in certain circumstances.
Your right to restriction of processing - You have the right to ask us to restrict the processing of your personal information in certain circumstances.
Your right to object to processing - You have the the right to object to the processing of your personal information in certain circumstances.
Your right to data portability - You have the right to ask that we transfer the personal information you gave us to another organisation, or to you, in certain circumstances.
You are not required to pay any charge for exercising your rights. If you make a request, we have one month to respond to you.
Please contact us at email@example.com if you wish to make a request.
How to complain
If you have any concerns about our use of your personal information, you can make a complaint to us at firstname.lastname@example.org
You can also complain to the ICO if you are unhappy with how we have used your data.
The ICO’s address:
Information Commissioner’s Office
Helpline number: 0303 123 1113
ICO website: https://www.ico.org.uk